Wednesday, April 29, 2009

Michelle Ballasiotes' Lobby Day story

From Michelle Ballasiotes, Pediatric Stroke Survivor and Youth Advocate of the Year, 2009:

This is my third year going to Washington DC for Lobby Day and it just keeps getting better and better. There is nothing like seeing your friends from the past years! We got there on Sunday and stepping off the elevator to go to dinner I ran into so many familiar faces: Joe Goldzweig (my favorite funny friend from Illinois), Sarah Anne Voyles (Youth Advocate of the Year for 2007), Sarah Exley (mom of a pediatric stroke survivor from Wisconsin) and others! I went to Lobby Day this year with Amber Boatright and her mom, Brenda Boss. Amber is a stroke survivor too. She had her stroke 3 days before her senior year in high school. We went down to the hotel lobby to meet 2 more mothers of young stroke survivors, Jessica Spear and Erin Grady. Our now very large group all went to dinner together. We got to talk about why we were at Lobby Day and some of the moms asked me questions about their kids, because their kids are all younger than I am. It was a great feeling to know that I was helping someone.

Monday was meeting day. I went to "Your Voice in the Media" and the speaker, Sarah Exley was amazing, as always. I got to help greet people at the door for the Survivor's Luncheon which was fun. I liked hearing the speakers: Sarah Exley again and a 10 year-old boy who had been through many heart surgeries. His speech was good because he feels just like I do. He wants to be treated like a normal kid. Next, I was at the Youth Advocate Training and we got lots of good instruction for Capitol Hill. The best part was it was fun. I give two thumbs up to Sarah Anne Voyles and Lee Storrow for leading the group.

After the youth training, we went to "Hook, Line and Sinker" training. Jessica Spear (this is her first Lobby Day and she is very passionate) went up on stage for a pop quiz on what to do at the Congressional meetings. She did great. I thought the meeting was helpful for what exactly to say on the Hill. We got to break out into our State meetings and go over who goes where and at what time. We also role played a practice meeting. Everyone was crammed full of information after all of the day's meetings!

Tuesday morning finally came. I had a yummy breakfast before I had to go up on stage to get my Youth Advocate of the Year award. I was very nervous at the last second, but my mom said I did fantastic. She is usually honest with me, so I believed her. Very quickly after the breakfast, we had our first meeting on the Hill. It is so enjoyable for me to tell my story, listen to others and amaze the Congressmen with all of the Youth Survivors from Georgia this year. I think we got most of them to do the very important asks. I went to 5 meetings, sometimes the member was there and sometimes we met with their aide. I liked meeting with all of them because I feel like they were listening to us.

Going to Lobby Day is so exciting, emotional and powerful all at once. I feel like I belong and that everyone understands my situation, even though I am a lot younger than most everyone else. I would love to do this forever and ever because I know that together, we can make a difference!

1 comment:

pammi said...

Heart disease is one of the most dangerous disease which takes thousands of life every years all over the world. If we know its symptoms and Treatment for heart disease. We can prevent is to large extent.